Update. New School Year. Fiasco Already

This has been quite a week with lots of ups and downs!

* We went to an immunologist. We feel it went well, and clearly this doctor knows what he is talking about, and we feel like we are going to get the help we need. Basically in a nut shell, after loads of testing, (still more coming) they are treating Benn as if he has CF (cystic fibrosis) even tho we know he does NOT have that. He gets sick just like those kids. We will be starting some medications and hope they get is thru this winter season.

* We have been literally fighting Benn's school dist for weeks, trying to educate them on Prader-Willi Syndrome. (eating disorder) and to get them to provide him with a one-on-one aid to follow him around. He literally has to be in line-of-site 24/7. He will do whatever it takes to get to food, and trying to get people to grasp this proves to be challenging. They are giving us a temporary aide for 2 weeks then we will reconvene at the district to see "if he needs it"

*Today, day 2 of school, he gets on the bus, tells the bus driver my stomach hurts, I didn't eat breakfast. The bus driver bought right into it. (She has had him for 2 years! She knows better!) Told his personal aide who got him off the bus he was starving, his mom didn't feed him, and proceeded to walk him into the gym where the breakfast program was going on, and FED HIM BREAKFAST! I am still so upset even now, I can't even begin to tell you! I feel like all of my educational efforts have gone unheeded. Now we will have to work 10 times as hard with Benn because he now thinks these are people he CAN con. When he is around others who he knows he can get away with things on he will focus in on only that one task. So now, instead of learning, he will be focusing in on how when where he con produce the next story. The thing they don't seem to get is Benn is a master manipulator, and con artist. His brain is telling him he is starving, he will do anything to get to that food, even if it means fabricating any lie possible!

* 7 am tomorrow morning I will be showing up at the district office trying to address this issue! Please pray that we can get to the bottom of this issue. Please pray for our everyday life, it is so challenging with him! His issues are the forethought of every-single-thing we do & places we go! Kind of like a drip of water, "it" never stops.

Jenn Myrick